Well...he's home

[anon4now]

So my son came home last night. Things were going well. He was happy to see his lil' sis, and she was super happy he was home. She was showing off all her birthday presents, and they went digging for bugs to look under his new microscope at. Then I brought him in to take a bath before bedtime and he had a melt down. It lasted about an hour, and I had to make ridiculous promises to calm him down. It was very frustrating for all of us. After he said he felt sick, and he couldn't fall asleep for a little while. I kept checking on him and I had to do a few checks in the middle of the night.

I kept him out of school today. They are very anxious about his return, and they are stressing me out. They want a crisis plan in place for him. I was on the phone with the nurse and she actually asked if their school was the best institution for him. So know I have to step up and advocate for him all over again. (This is a common problem with diabetes care in school systems, so I have to read up on the different laws) His teacher has already given me her cell and home phone number so I can keep in touch with her. And the principal is new to the school, so he has no history with my son and has nothing to base his opinions on except this crisis we're going through right now.

Then during all of this, I'm using up my vacation time for all the appointments, etc. And I'm the breadwinner of the family, so if I don't have vacation time, I start to lose money. I'm lucky I'm good at what I do, or I could be looking at losing my job in the future if things don't calm down. My DH started complaining of a tension headache last night, so I know he's stressed to the max. And the baby just keeps asking why her brother is sad, and if he needs a doctor.

DH gave DS his med this morning, and he just reported him being zombied-out. We're not sure if its' the med or getting up early this morning to bring my MIL to the airport. (One of the promises I made the night before). And I'm here at work just waiting for this day to be over.

Thanks for listening, hope you could follow along.

Anon

[katiekat]

I am glad to hear that he is home.
I'm sorry that you are having a difficult time already. You have enough to deal with without the school causing you stress.
What meds is your son taking? I know that when Sean started his current meds(Trileptal and Abilify) he was "zombied out" for maybe the first week or so but that went away fairly quickly.

[anon4now]

He's on Thorazine right now. Lowest dose (25mg), once in the AM. We tried Trilepital but it caused him to get a big rash on his stomach and arms. He's been taking the Thorazine since Thursday I think, so tomorrow will be one week. DH just told me it went away after a few hours and he's playing with lil' sis right now. So hopefully he just feels it for an hour or so and then comes right back. I will have to plan for him to take the pill so he isn't like that for the beg. of school. Class starts at 9, so hopefully he will be ok. And like you said, maybe after a few weeks it will go away. We'll just keep our eye on it.

Anon

[jfla]

Glad to hear that he's home and the med effect may wear off. Slowly slowly things fall into place...one thing at a time.

[charliegirl]

I'm glad he is home.

Possibly the melt down is caused by the strength of the med dropping in his system. If its something that has to build up in his system then that should go away when there is enough in his system to keep him at a steady level. You should ask the dr about that. It might help if you could explain to him that the bad feelings that cause the melt downs won't last. I tried to look it up but couldn't find anything referring specifically to melt downs.

[bugsmom]

So happy to hear that your baby is home.

I know with Thorizine you can get that "sleepy, zobie" feeling. I would just give it some time. Like with all meds, his body will adjust soon enough. If it's too much, you'll know.

Sending you lots of ((((((hugs)))))).

[jj]

I too am glad he is home. I'm not glad things didn't go so well. I know the whole school thing must have you stressed to the max. Keeping my fingers crossed this med will help.

Ooddles of hugs to you. You are one strong lady to deal with all this.

[2sentbygod~Brooke]

Glad he's home.

[charliegirl]

Was today any better?

[anon4now]

Sept 4, 2008 17:21:07 GMT -5 charliegirl said:

Was today any better?

So far every night he's had a break down. Last night we added another 25 mg of Thorazine to help with the evenings. He still broke down last night, but I will give it a few days/weeks before we change anything.

I talked with the psychiatrist and he's thinking about changing him to lithium. This is the first time I met this psychiatrist and I think he was great (first impression anyways). He rattled off a bunch of meds (that I had already read about) and told me why he liked/disliked each one, what his experiences were, what research says etc. I'm glad I do all the reading I do. I was able to be apart of the conversation, and he was very receptive to that. Rather than him telling me what to do, we decided to keep the thorazine going since it was helping during the day, but to keep lithium on the waiting list if we needed to go that route. We discussed how the thorazine doesn't help with depression, and lithium would. And so I'll be keeping an eye on his depression to see if it's active still. I told him it was hard to judge since I've only had him home for 2 days.

So we're moving forward. One thing at a time. Today is his first day of school. I'm anxious, excited, worried, exhausted. I hope hope hope he has a great day at school.

Anon