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Post by lookingforhelp on Feb 24, 2007 21:03:33 GMT -5
:'(Hello, Dear Members.
I hope you are well this evening.
I wanted to let you know that if anyone is still interested in participating with the patient/parent education materials, we are nearing the close of accepting new participants. Also, if you have already decided to participate, and you received the questionnaire, please be sure to e-mail it to me by Monday before 10 am EST. (I was able to get a few more days to accept them...I am missing a few.)
Also, it was brought to my attention that I had made a typo in the confidentiality regulations that are followed ... it is called CASRO, not CASTRO. Sorry about that. You can Goggle it to learn more about how it works.
Thanks so much for your trust and support. It means a lot to know that there are concerned people who want to help in a meaningful way. I really am happy to be a part of this, and I look forward to the completed materials. I hope they really help families. I also want to thank those of you who have corresponded with me over the past month. You are kind. I do feel as though I know you. It is amazing how wonderful the Internet can be when used for good, and in an appropriate way.
My sincere thanks and Best to all,
Maria
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