Pulmicort

[katiekat]

I did try that yesterday and spoke to a patient advocate. She told me that basically in less he's going to kill himself there's not much they can do. That suicide is the only thing that qualifies as an emergency. My only other option was to agree to take the first available appt at any Dr. anywhere on a moments notice. Most of the places were an hour or more away. That's really not possible. It's just not fair. I dont understand why it's so difficult.If he had a physical problem I would not be having this much trouble Im sure.

[crazyhouse]

I'm sure you are very right from the way I'v been treated by three different types of insurance I totally understand. It isn't fair that there basicly asking you to come in when the moment is right for the Dr. and he is feeling gracious with his time!

I have a ? does Sean feel the need to hurt himself or others when he is going thru an episode? Sometimes they consider children to need care more urgently when a child is projecting physical harm to himself or others. It could be something as little as banging his head against the wall or floor. I hope this is not the case. One of my friends children needed to see a mental health specialist and they turned them away. A week later she noticed he was be very destructive and not being to nice to his 2 yr old sister and his younger brothers and then tried to take on his mom. wrong move! She took him right back there and they ended up treating him. He is perfectly fine now. Another one of her children suffers from severe depression, they turned her away three times before she finally got them to understand that he needed to be seen. Did you try the Dr. finder that Misty gave you the link for?

[katiekat]

As unhappy as it makes me he does bang his head on the wall or furniture or punch himself in the head when he is having one of his crying episodes. I guess I will mention this to the advocate and let her know that if something is not done and my child hurts himself I will hold them responsible. It's worth a try

[bugsmom]

Katie...my heart just goes out to you about all this insurence mess. It just burns me up to here stories like yours! It is just unacceptable to me that in the USA you can't find a doctor to help your son because of insurence. Everyone has given you wonderful suggestions. I pray that somehow you find Sean the help he needs. I just don't know how they can give you a list of doctors and then none of them will accept you! I would think that if thats the case your ins co. would approve for you to go to someone else. I'm so sorry your going through this...it's absolutely not fair! You are such a wonderful mother...hang in there, something has to come through!


As for the Pulmicort question...my Josh has been on Pulmicort since he was nine months old. It's hard for me to say if this has effected him or not because its something that he has always taken. I will say that it changed his life. Between the ages of 9 months and 3 years old he had approx 9 hospital stays due to his asthma. Not ER visits (that was more) but long stays, 4 days to a week. It was the main reason why we didn't have anymore children...anyway the Pulmicort really helped once he turned 3. He still takes it to this day because nothing else has worked as well. With that said, I have always thought that all the asthma drugs that Josh took as a small child had something to do with what we are dealing with now. Lots of people will disagree with me and that's ok, but thats how I feel. Steroids can be a funny thing...when Josh was really little, I used to see him change before my eyes when he was on oral steroids. Even though Pulmicort is an inhaled steroid, I could still see it effecting some children in the same way. Anyway...that's our experience with Pulmicort. I hope it helps in some way.

Hang in there...you and Sean are always on my prayer list!

[crazyhouse]

When Jake has to take Albuterol My husband and I say Jake coming off Albuterol is like an addict coming off crack! My mother in law believes that Jake's delays are from all the heavy meds he had to take as an infant as well.

Ok another ? Did you get Dr.'s names from the insurance company, and then call them and them tell you that they didn't except your insurance? If so you can call the Insurance and tell them that the Dr.'s office is refusing to treat your son, and ask them if they can call and persuade them into an appointment? If they can't do anything for you, you can call the hospital that is affiliated with this Dr. and ask to speak with patient services, where you can file a complaint against a Dr. that is refusing to treat your son. The hospitals don't like complaints about there Dr.s because complaints lead to law suits which lead to malpractice insurance premiums to rise.

A friend of mine went through this with his ankle a Dr. wanted to cast his ankle but not due surgery because they have state Insurance. (he wouldn't get paid enough by the state) 9 months of casts and pain. Finally they called the hospital.

Anyways we had an OK day today but Jake is just bouncin all over the place. I can't get him to focus, so I finally broke down and called the mental behavior people and thier gonna cal me back Monday. I can't say I know what you're going thru but I can say the feeling I have with and for Jake and his situation I think are the same as yours and Sean's.

My mother in law told me when we figured out that Jake had ADHD you have an uphill fight ahead of you, and when your son needs something you can't take no for an answer. She tried to put him into preschool at 3 years old and they told her that her son was "retarded" and that she was wasting her money. She turned around and told him I'll decide what I want waste my money on thank you very much, and don't you EVER call my son retarded again because he's not. She took him to any Dr. that would listen, and as he got older she researched the schools to see what types of special ed they offered and fought for all of it. He is not retarded and he is very smart kinda quiet but he sure is a fun person to be around. No matter how bad his day is going he has a smile and a wave for anyone. Keep that in mind because your son could be making himself into the nicest person you could ever meet.
<<<<<<Hugs to hang on by>>>>>>